検索結果 16 件

デジタル記事
武村 真治, 曽根 智史<Z19-152>保健医療科学 = Journal of the National Institute of Public Health68(1):2019.2p.45-54
国立国会図書館全国の図書館
  • 件名intractable & rare diseases research and development (R......ect management research management 難病・希少疾患 研究開発 (R&D)...
デジタル記事
仁宮 洸太, 水島 洋, 木下 秀明, 今村 恭子<Z19-152>保健医療科学 = Journal of the National Institute of Public Health68(3):2019.8p.270-278
国立国会図書館全国の図書館
  • 件名...患者登録レジストリ 研究基盤 intractable diseases rare diseases research expense bioban......tient registry research infra-structure
  • 並列タイトル等(連結)...ecting Japan's research expenses for research on intractable and rare diseases : Toward an e......inalization of intractable and rare diseases as a research topic
  • 並列タイトル等...ecting Japan's research expenses for research on intractable and rare diseases : Toward an e......inalization of intractable and rare diseases as a research topic
デジタル記事
2013Intractable & Rare Diseases Research2 1p.1-2
インターネットで読める全国の図書館
  • 要約等...international "Rare Disease Day". On and around this da......n 60 countries and regions worldw......year's theme, "Rare Disorders with......c awareness of intractable and rare diseases has heightene......rage discovery and development of......an Union (EU), and some parts of ......rapeutic tools and strategies. Intractable and rare diseases cause patient......gical despair, and economic hards......eutic outcomes and the lack of pr......he features of intractable and rare diseases and the increasing...... of identified diseases make these diseases an important ......c health issue and a challenge to......fic aspects of research on intractable and rare disea...
  • 参照...dical care for and research into rare diseases
  • 出版者(掲載誌)International Research and Cooperation Association for B...
デジタル記事
飯塚 敏晃<Z71-M987>RIETI highlight(60):2016.Sump.19-22
インターネットで読める国立国会図書館全国の図書館
  • 並列タイトル等(連結)Promoting Innovation in Small Markets : Evidence from the market for rare and intractable diseases
  • 並列タイトル等Promoting Innovation in Small Markets : Evidence from the market for rare and intractable diseases
デジタル記事
2012Intractable & Rare Diseases Research1 1p.1-2
インターネットで読める全国の図書館
  • 要約等Intractable diseases, literally de......ainly refer to rare diseases that have res......ifiable causes and/or lack of cle......7,000 distinct rare diseases worldwide, of......enetic origins and 50% occuring in childhood and lasting for a ......the concept of rare disease (<i>2</i>). Rare diseases bring patient......ical suffering and psychological ......erapeutic hope and the absence of......these kinds of diseases require a sig......th financially and mentally. Alth...... each specific disease affects a limi...... patients with rare diseases represents a ......, have various rare diseases (<i>2</i>). I......le suffer from rare diseases (<i>3</i>). These fa...
  • 参照Innovative measures to combat rare diseases in China: The national rare diseases registry syst......ohort studies, and studies in com......ision medicine research
  • 出版者(掲載誌)International Research and Cooperation Association for B...
デジタル記事
2012BioScience Trends6 2p.48-51
インターネットで読める全国の図書館
  • 要約等Intractable and rare diseases are an import......c health issue and a challenge to......an Union (EU), and some parts of ......, South Korea, and Taiwan, involv......rage discovery and development of......information on intractable and rare diseases and improve patien......hcare, special research programs to strengthen basic and applied research on intractable and rare diseases, and so on. While C...... regulation of intractable and rare diseases, but still la......US, EU, Japan, and other countries and regions with o......current status and future perspectives for intractable and rare diseases in Asia, we recommend that t...
  • 件名Orphan diseases orphan drugs legislation reg...
  • 参照...dical care for and research into rare diseases Urine-derived...... tool to study rare human diseases Innovative me......ures to combat rare diseases in China: The national rare diseases registry syst......ohort studies, and studies in com......ision medicine research The use of art......e treatment of rare diseases: A scoping re......lans, policies and government actions for rare diseases in 23 countri......ion system for rare diseases with an approach to data arc...
記事
東 範行, 白神 史雄<Z19-197>日本眼科學會雜誌 = Journal of Japanese Ophthalmological Society121(6):2017.6p.487-497
国立国会図書館全国の図書館
  • 並列タイトル等(連結)...oretinopathy : Research on Rare and Intractable Diseases, Health and Labour Sciences Research Grants
  • 並列タイトル等...oretinopathy : Research on Rare and Intractable Diseases, Health and Labour Sciences Research Grants
デジタル記事
武村 真治<Z19-152>保健医療科学 = Journal of the National Institute of Public Health68(2):2019.5p.137-146
国立国会図書館全国の図書館
  • 件名...sis management intractable & rare diseases research and development (R&D) registry gu...
  • 並列タイトル等(連結)Research and development on......y preparedness and response from ...... health crisis and intractable & rare diseases
  • 並列タイトル等Research and development on......y preparedness and response from ...... health crisis and intractable & rare diseases
デジタル記事
中田 勝己<Z19-222>日本内科学会雑誌100(3) 2011.3.10p.657~667
国立国会図書館全国の図書館
  • 並列タイトル等(連結)Progress and achievement of rare/intractable diseases research in Japan
  • 並列タイトル等Progress and achievement of rare/intractable diseases research in Japan
記事
Shinji, Takemura, Tomofumi, Sone国立保健医療科学院2019-02保健医療科学 = Journal of the National Institute of Public Health68 1p.45-54
全国の図書館
  • 一般注記...0Health%20to%20research%20program%20management%22%7D
デジタル記事
仁宮 洸太, 水島 洋, 木下 秀明, 今村 恭子2019保健医療科学68 3p.270-278
インターネットで読める全国の図書館
  • 要約等...asures against intractable and rare diseases earlier than ......nce of Japan's research on such diseases has been low ......s most of such diseases are inheritable and some are uneve......to improve its research performance in...... of Designated intractable/rare diseases has increased...... Patients with Intractable/Rare Diseases was implement......panese medical researchers now need to......ments for more diseases with a small ...... improve their research performance.</......affect Japan's research expenses on intractable and rare diseases by using mult......sion analysis. Research materials were......y reports from research groups supported by Health an...
  • 件名研究基盤 research infrastructure......ンク biobank 研究費 research expense 希少疾患 rare diseases 難病 intractable diseases
  • 並列タイトル等(連結)...ecting Japanʼs research expenses for research on intractable and rare diseases: Toward an en......inalization of intractable and rare diseases as a research topic
デジタル記事
古澤 嘉彦2016神経治療学33 5p.S116-S116
インターネットで読める全国の図書館
  • 並列タイトル等(連結)Stragey of AMED for research on rare and intractable diseases
  • 並列タイトル等Stragey of AMED for research on rare and intractable diseases
デジタル記事
武村 真治, 曽根 智史2019-02-28保健医療科学68 1p.45-54
インターネットで読める全国の図書館
  • 要約等...the history of research and development (R&D) for intractable & rare diseases in Japan, and describes how ......en involved in and contributed to R&D and how the NIPH w...... 1972, R&D for intractable & rare diseases had been impl......he “Outline of Intractable Disease Measures”, whi......for addressing intractable & rare diseases. Because the ......tion of survey/research” as high prior...... wide range of research, including basic, clinical, and epidemiological research, was promoted ......he goal of the research was not so clear, and on the other hand, it was not fo......&D projects on intractable diseases were mainly implemen...
  • 件名健康関連研究開発管理 research management プロジ......希少疾患,研究開発(R&D) intractable & rare diseases, research and development (R&D)
  • 並列タイトル等(連結)Research and development on intractable & rare diseases in Japan : :C......blic Health to research program management
記事
武村, 真治国立保健医療科学院2019-05保健医療科学 = Journal of the National Institute of Public Health68 2p.137-146
全国の図書館
  • 並列タイトル等(連結)Research and development on......y preparedness and response:from ...... health crisis and intractable & rare diseases
  • 並列タイトル等Research and development on......y preparedness and response:from ...... health crisis and intractable & rare diseases
デジタル記事
武村 真治2019-05-01保健医療科学68 2p.137-146
インターネットで読める全国の図書館
  • 要約等... for promoting research and development (R......it with R&D on intractable & rare diseases, which contin...... for incurable diseases.</p><p>Health......rrorism, etc., and the other is t...... people’s life and safety is thre......f food, water, and daily necessit......unction of command system or medi......an be managed, and the management......n be developed and established. T......he other event and to establish t......ain situation, and (3) to establi...... the crisis is rare; and (4) the crisis......poses a severe and long-term burd......quirements for intractable & rare diseases. Of these, “r......ess of science and technology. Nevertheless, in ...
  • 件名... registry 研究開発 research and development (R&D) 難病・希少疾患 intractable & rare diseases 健康危機管理 health crisis managem...
  • 並列タイトル等(連結)Research and development on......y preparedness and response : fro...... health crisis and intractable & rare diseases
デジタル記事
中田 勝己2011日本内科学会雑誌100 3p.657-667
インターネットで読める全国の図書館
  • 並列タイトル等(連結)6. Progress and Achievement of Rare/Intractable Diseases Research in Japan.
  • 並列タイトル等6. Progress and Achievement of Rare/Intractable Diseases Research in Japan.

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